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Advocacy Activities
Advocate for Federal Food Allergy Research Money
It takes about 60 seconds to fill out this form asking for an increase in federal money for food allergy research. The form will send a letter to your local reps - you don't have to know who they are, it does the thinking for you. Click here to make your voice heard!
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Take 1 minute to promote Celiac Disease awareness
Only a fraction of the 3 million Americans with Celiac Disease are diagnosed.
Sharing
your story will educate others. It will help find allies for our
awareness efforts. Most importantly, your story advocates for those
still struggling to find proper medical care.
The American Celiac Disease Alliance has made it easy to write to your congressional representative about supporting H.Con.Res. 110, the National Celiac Awareness bill. Simply click here to fill in a few fields and send it off. It's that simple.
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Petition to the FDA to improve ingredient labels
In 2008, a petition to FDA to include rye and barley in the list of most common
allergens which must be disclosed on packaging was submitted. Right now, only wheat
has to be disclosed, but as we all know the gluten of rye and barley is
just as offensive to celiacs as that of wheat. So to include wheat in
the list, without including rye and barley was nonsensical. The list
needs to be amended so that rye and barley sources are also disclosed.
Without
this disclosure, such things as "modified food starch", "flavor,"
"natural flavor" and other ambiguous ingredients may be derived from
rye or barley without disclosure. This means that currently we cannot
buy or eat anything with such "ambiguous" ingredients without a great
deal of risk. The petition is now available to be seen and publicly
commented upon at:
http://www.regulations.gov/fdmspublic/component/main?main=DocketDetail&d=FDA-2008-P-0509.
Go there, read the petition, and leave a comment in
favor of it for the FDA's consideration. The more positive comments we
get stored in FDA's database, the sooner we are likely to get action on
this. Look under the navy blue line and click the first yellow add comments button you see - it is on the same line as the name of the petitioner, Hallie Davis.Hallie wants everyone to know that "Despite the FDA saying it is past the deadline for comments on this petition, that's really NOT true. Anyone can still post comments, and they will still receive consideration. The problem is that FDA was 6 months late in finally getting my petition into the database!"
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